inclusion

Some basics of goalball

This past summer, Israel’s male youth goalball team won the European ParaYouth Games. (photo by Lilach Weiss)

Can you imagine a sporting event in which the audience sits in silence? Well, this is how goalball is played. Why? So that the visually challenged players can hear the bells inside the game ball.

And, speaking of the ball, it differs quite a bit from a soccer ball. In addition to having eight small holes in it – which allow the players to hear the two bells inside of it – the hard rubber ball is approximately 76 centimetres in circumference and weighs 1.25 kilograms. By contrast, a standard soccer ball has a circumference of 68 to 70 centimetres and weighs significantly less, between 400 and 450 grams.

To ensure fair competition, goalball participants must wear opaque eye shades. All international athletes must be legally blind, meaning they have less than 10% vision and are classified as B3 (partial sight), B2 (less sight than B2) or B1 (totally blind).

The goalball court has slightly raised markings so each player knows where their post is and the game is played indoors on a court measuring 18 metres long and nine metres wide, usually with short walls to help keep the ball inside. Again, this is different from soccer, which is played on a field that is 125 metres by 85 metres.

Each game is broken down into two 12-minute sessions with a three-minute break between the first and second halves. There are six players on a goalball team, with just three members playing at any one time.

Each goalball player has a specific job. The centre is the most responsible for defence, as they have the ability to support the left or right wing. The right winger defends the right-hand side of the goal and the left winger the left, but both are also main attacking players. The objective, as with most such games, is to score the most goals.

The team area is the first defence section, which starts from the goal line. In this area, defenders are allowed to block and control the ball to stop it from entering the goal.

The landing area starts at the end of the defence line. In this section, the attacking player can move around to take a shot at the opposing goal. The neutral areas are safe zones that provide space for defending teams to hear the ball coming towards them.

Here is how the game is played in a few situations. When the defending team blocks the ball, thus preventing a goal, the game continues. When the ball is blocked and then crosses the sideline, the play is restarted by the team that blocked the ball. When the ball is thrown over the sideline, the other team restarts the game.

Players protect the goal on their hands and knees. Unlike in soccer, the ball is not kicked, it is thrown from either a standing position underarm, or rolled. To reduce the sound and make it difficult for the opponents, players try to release the ball close to the floor. They can also make the ball quieter by spinning it. The team is given a foul if their player doesn’t throw the ball within 10 seconds of touching it.

Blind soccer, another sport played by visually challenged players, differs from goalball in several ways. For instance, while players in both games wear eye covers, players in blind soccer chase the ball in an upright position. Blind soccer halves are longer, at 20 or 25 minutes, and, in blind soccer, each team has five players on the pitch at any time, four outfield players who are visually impaired and a goalkeeper – who need not be visually challenged.

Israeli goalball coach Raz Shoham said most of the injuries in the game come from over-use of the body and not from being hit by the ball. In Israel, players’ free time is limited by the fact that almost all of them work or study.

photo - Goalball player Lihi Ben David in action at the Toyko Paralympic Games in 2020 — Goalball player Lihi Ben David in action at the Toyko Paralympic Games in 2020. *(photo by Keren Isaacson)*

Before each practice, there is a 40-minute warmup session in which players exercise their torso, hands and legs. Practices are held on Thursdays and Fridays in four locations: Beer Sheva, Jerusalem, Tel Aviv and Afula. Men and boys practise mostly in Afula, while the women practise mostly in Jerusalem. Practice times are a function of when the sports auditorium is available.

Traveling can sometimes be an issue. Shoham explained that a strong player showed up at the team’s summer camp and wanted to continue playing after the summer ended, but there was a problem getting her from her village to practices. On the other hand, sometimes players leave the sport for a stretch of time and then return. Take Orel, who started playing while still in elementary school, left for a few years and now, at the age of 15, is a key player on the male youth team.

According to Shoham, goalball players range in age. At the moment, the oldest person who comes out to play is a 65-year-old grandmother. Currently, on the official playing teams, the oldest player is 35. The official team players get a few thousand shekels for playing, but it is not like regular soccer, in which team members frequently earn high salaries.

Israeli goalball players are expected to attend some 25 practices a month. And there have been good results from the hard work. Just this past summer, Israel’s male youth goalball team – players Asad Mahamid, Doron Hodeda, Shai Avni, Ariel Alfasi and Orel Ybarkan – won the European ParaYouth Games.

Coach Snir Cohen knew before the tournament that he had good players, but said he just didn’t know how good. His goal is developing this youth team into a strong adult team.

Nineteen-year-old player Lihi Ben David, who plays left wing, spoke with the Independent about her recent training experience in Brazil. The cost of the trip was largely covered by the Israel Sports Association for the Disabled (ISAD). The Israeli and Brazilian players conversed in English. She said it was refreshing to learn about a different culture. The hard part for Ben David, who is an observant Jew, was playing during the nine mourning days of the Hebrew month of Av.

Deborah Rubin Fields is an Israel-based features writer. She is also the author of Take a Peek Inside: A Child’s Guide to Radiology Exams, published in English, Hebrew and Arabic.

A new creative arts market

Siblings Becky, left, and Margaux Wosk (photo from We Belong!)

The first-ever We Belong! Festival will take place Aug. 27 in Downtown Vancouver. Organized by siblings Margaux and Becky Wosk, We Belong! is a “one-of-a-kind creative arts market with a focus on giving disabled artists the opportunity to showcase and sell their art.”

Margaux Wosk is a self-taught artist, an activist and a disability rights advocate, fighting for disabled small business owners to get resources. Becky Wosk is an artist, designer, writer and musician; she and Emmalee Watts form the duo Hollow Twin.

Margaux Wosk started their business, Retrophiliac (shopretrophiliac.com), more than 10 years ago. Its focus is on visual art.

“Being an openly autistic person,” said Wosk, “I found that there was a void in the marketplace for the type of items I wanted to see and purchase.

“My business has really ramped up in the last five years,” they continued, “and I focus on autistic, neurodiversity and disability pride items, such as enamel pins, patches and stickers. I design retro-inspired pins, stickers and patches as well. I also have other items I offer and I have over 26 retailers between Canada and the United States.”

Wosk also uses their business “as a way to talk to the government about disabled small business owners” and they have gone to the provincial budget meeting two years in a row “to rally for funding and resources for other people like myself.”

They explained, “Currently, as it stands, we have no resources, and any of the funding that goes to ‘inclusive employment’ only goes to employers that hire disabled people, not disabled people who own their own business.”

Part of the mission of the We Belong! Festival is to raise awareness.

“I have been part of other markets and I do enjoy it, but none of them meet all of my needs,” said Wosk. “I find that sometimes there are financial barriers, sometimes the events are just too long and I find that it can take a toll on my mind and body. I wanted to create something with little barriers for other disabled artists and we were lucky enough to be the recipients of the Downtown Vancouver BIA’s [Public Space] Vibrancy Grant. This way, we won’t have to charge our vendors any costs and we can provide them tables, canopies and chairs. I want people to see what we’re all capable of.”

The Downtown Vancouver Business Improvement Association helped secure the market’s space at 855 West Hastings St. (Lot 19), and it is being provided free of charge. The location, which is between Burrard and Howe streets, is close to Waterfront Station and other public transit points.

“Once the location and date were confirmed,” said Becky Wosk, “we were able to figure out how many vendors we can accommodate and, from there, we put out a call to artists/makers. We have a specific budget to work with, so we have been able to gather quotes for the supplies we will need to make this event successful.

“When working on an event,” she said, “it’s important to work backwards from the date that you have secured and determine what needs to be ordered/booked in advance of that date – for example, canopies need to be booked 30 days out etc. [There are] lots of small details to be mindful of!”

In addition to the vendors who will be selling their creations, the market will include four nonprofits: Artists Helping Artists, Curiko, the Jewish Community Centre of Greater Vancouver’s Art Hive, which is run by Leamore Cohen, and the BC People First Society, on whose board Margaux Wosk sits, as regional director, Lower Mainland West.

While the deadline to apply as an exhibitor has passed, the Wosks are still looking for volunteers to help with set up and tear down. Anyone interested should email [email protected].

The Aug. 27 market runs from 11 a.m. to 3 p.m.

Thirteen calls for action

The recently released report, Twice Blessed 2.0: The Jewish LGBTQ2SIA+ Initiative, offers a hint of just how diverse the Metro Vancouver Jewish community is. In that diversity lies challenges and opportunities.

“Embarking on Twice Blessed 2.0: The Jewish LGBTQ2SIA+ Initiative has been an important step in acknowledging our gaps and our commitment to learn and work towards diversity and inclusion in the Jewish community,” write Carmel Tanaka, founder and executive director of JQT Vancouver, and Tanja Demajo, chief executive officer of Jewish Family Services Vancouver, in the final report’s preamble. “It is important to identify the work that has and has not been done. Taking pause and asking ourselves: Where are we today? What prevents us from engaging deeper into these conversations about diversity and inclusion? And where do we want to go?”

“The word diversity is used so often these days, but it is not easy to define what it means on a day-to-day basis in an environment such as JFS,” Demajo told the Independent. “This process started simply by acknowledging ‘we don’t know what we don’t know’ but we are willing to learn. Carmel and I started conversations about the LGBTQ2SIA+ community and how open JFS is to their members. Saying everyone is welcome is not enough, it takes much more commitment and work. There could have been other ways to engage in that conversation, but we started with the training and learning about the work done in 2004.”

“We are honoured to have collaborated with Dr. Jacqueline Walters, who did the 2004 survey that never saw the day of light,” said Tanaka. “It is so rare to be able to include those who have come before us in ways that help with continuity and give the opportunity for healing. A lot has changed since 2004, not just in the Jewish community on LGBTQ2SIA+ inclusion, but also more broadly, especially surrounding language and terminology. So, we paid homage to the 2004 questions and updated how these questions were asked in 2022.”

Developed from the 2004 community needs assessment conducted by JFS, many of the 2022 questions were the same, but others were added or reworded to reflect changing times or for clearer results. The survey was distributed over a two-month period this past spring, and 111 people responded, compared to 56 responses in 2004; there were three people who responded to both surveys.

The majority of respondents to the 2022 survey were in the 30-39 age bracket (or older) and ethnically self-identified as Jewish, in addition to being Canadian and of varying European identities. Of the 111 respondents, 31.8% identified as disabled (mental health, chronic pain, etc.) and 24.1% as neurodivergent (ADHD, autism, anxiety, PTSD). In 2022, half of respondents identified themselves as cultural Jews, with one-third practising other religions or ways of life; 50% were in multi-faith/racial/ethnic/cultural relationships.

These were just some of the findings indicating that there is broad diversity within the Jewish community. The findings, in part, were generated by the open-endedness of many of the questions.

“JQT approached the creation of the 2022 survey with great care and intention – a love letter to the Jewish queer and trans community,” said Tanaka. “It was and remains extremely important to JQT that the experience of filling out this survey was not triggering for those who are on the spectrum of Jewish and LGBTQ2SIA+ identities. All too often, these types of surveys, which ‘study’ our communities, don’t allow for self-identification (are not asking open-ended questions), instead forcing those being surveyed into checking boxes – boxes that either don’t fully encompass who we are and/or other us and/or are hurtful to us.”

When she saw the results, Demajo said, “I had this moment of realization that there is much social justice work that we need to do in order to reach out to those who need the support. One of the questions we ask ourselves often is ‘who are we missing and why?’ This survey and the answers we received made it clear that the community we are supposed to serve is very diverse and requires us to wrestle with questions of gender, race and religion. Some may argue that these are political questions but, for us, these are questions that impact our service delivery. If someone doesn’t feel welcomed in our space, no matter how dire their needs are, they will not accept the support.”

“The finding that most resonated with my personal experience is that, today, so many of us in the JQT community are mixed like me and/or are in mixed relationships like my family – mixed racially, culturally, ethnically, religiously, etc.,” said Tanaka, who self-describes as queer, neurodivergent and Jewpanese. “Growing up in Vancouver’s Jewish community as a mixed kid was pretty isolating. It’s great to see that the future of the Jewish community is mixed!

“The finding that surprised me the most was how many Jewish queer and trans people identify as white or Caucasian when asked about their ethnicity and race,” she added. “It wasn’t too long ago when Jews were not considered white, so it’s sobering to learn of this shift in identity.

“The finding that made me the most sad,” she said, “was how the JQT community, especially our seniors, feel about aging and entering long-term care. Honestly, it’s terrifying.”

Some of the comments made by seniors who responded to the survey were: “As a transgendered Jew long-term care is a frightening prospect as transgendered seniors are often abused in long-term care”; “Worry that my relationship will not be seen as real”; and “I fear that it will be primarily heterosexual and that I will have to go back into the closet.”

Among the 13 calls for actions made in the report are: “Develop inclusive care services for Jewish LGBTQ2SIA+ seniors” and “Ensure that senior care home intake adequately assesses the needs of LGBTQ2SIA+ residents.”

Jewish Federation of Greater Vancouver supported the survey, and one of the other recommendations is to allocate some of the annual campaign funds to the “operational costs of providing year-round Jewish LGBTQ2SIA+ programming for all ages and community outreach in both Jewish and LGBTQ2SIA+ communities.” More education is recommended, including diversity, equity, inclusion (DEI) training, and more “open discussion with rabbis, synagogues and boards to adopt an ‘open tent’ policy regarding intermarriage.” To see the full set of recommendations, visit jqtvancouver.ca/twice-blessed-2.

That all four of the 2004 recommendations still apply – more education of community leaders, a larger Jewish presence at LGBT activities, inclusion of LGBT Jewish community members on Jewish committees and boards, and increased LGBT presence at Jewish events – indicates the challenges of change, the report notes. However, Twice Blessed 2.0 also highlights some progress, including JQT’s recent partnering with the Vancouver Jewish Film Festival on a queer Jewish film, with the Zack Gallery on the first Jewish LGBTQ2SIA+ art exhibit and with the Jewish Museum and Archives of British Columbia on the first B.C. Jewish Queer and Trans Oral History.

As for JFS, Demajo said the agency’s priorities for the next year are “allocating funds for further training and awareness building” and to “partner on initiatives with LGBTQ2SIA+ agencies, ensure LGBTQ2SIA+ friendly Jewish mental health support, [and] adjust our policies to include DEI.”

She said, “JFS is in a unique position in the community to touch lives of a diverse community. At the same time, those we support don’t always reach out to us, we need to reach out to them. And, in order to do that, sensitivity, understanding of social justice and intersection of culture, gender, race and religion is essential for our ability to do the work in a sensitive and uplifting way.”

Another of the calls for action is for the adoption of a “Nothing about us without us” approach and Tanaka thanked Demajo and JFS for doing just that.

“Building trust between the JQT community and JFS, learning from one another, is the key to building a healthier Jewish community,” said Tanaka, noting that JQT is a volunteer-run group and “the only homegrown Jewish LGBTQ2SIA+ nonprofit in Canada in operation today,” funded solely by donations and grants.

JQT has presented the findings to the JFS board and in staff training, and would like the opportunity to present them to other local Jewish organizations. However, response to the report has been quiet, said Tanaka, who postulated that there is a “fear of airing dirty laundry.”

“The truth is that we’re not here to point fingers,” she said. “We’re here so that queer and trans Jews – and, in general, marginalized Jews on the periphery of the Jewish community, whether they be Jews of Colour, patrilineal Jews, disabled Jews, queer and/or trans Jews, etc. – can also benefit and have access to the same infrastructure as the mainstream Jewish community.”

Cynthia Ramsay is a member of the JQT Vancouver board.

Living their values daily

Dror Israel representatives Noam Schlanger and Joanna Zeiger-Guerra visited Seattle, Victoria and Vancouver last month. (photos from Dror Israel)

Last month, two representatives of Dror Israel, Noam Schlanger and Joanna Zeiger-Guerra, paid a visit to the region – Seattle, Victoria and Vancouver.

“We are educators at Dror Israel, a grassroots educational organization which works all through Israel,” Schlanger told the Independent. “Our 16 intentional communities of young, trained educators operate a variety of programs, including a network of innovative schools for at-risk youth and Jewish-Arab encounters, which all aim to bring together Israel’s different populations and create a more just and equal society. Our pedagogy focuses on empowerment and community building.”

Comprised of 1,300 people, Dror Israel works in a multitude of fields in Israel and has an impact on the lives of more than 150,000 people each year.

As for their specific involvement in Dror Israel, Schlanger has led a youth centre in Kafr Manda, an Arab town in Lower Galilee, and now works at the community garden in Acre (in northern Israel). Zeiger-Guerra is an educator who is familiar to many young people in southern British Columbia, having worked at Camp Miriam, the Jewish summer camp on Gabriola Island, for several summers. She is also a Habonim Dror alumna.

“I founded and operate a community garden where I work with mainly elderly Russian speakers, and Joanna mentors a cohort of our young educators taking their first steps in a variety of formal and informal educational settings,” explained Schlanger.

During their local visits, Schlanger and Zeiger-Guerra met with a variety of individuals, groups and communities to inform them of their work, specifically Dror Israel’s coexistence programs and ongoing relief efforts with Ukrainian refugee children. These gatherings included talks at Congregation Emanu-El in Victoria and with the Victoria Multifaith Society.

The pair also met with representatives from the Jewish Federation of Victoria and Vancouver Island and the Jewish Federation of Greater Vancouver. Those encounters involved “thinking about creative opportunities for programming collaboration,” said Schlanger.

For Schlanger, the message Dror brings – an inclusive vision of Zionism that strives to create a place for everyone, and the dream of a just and equal Israel – is a breath of fresh air amid the polarized discourse about the country.

Dror Israel was started in 2006 by graduates of the Israeli youth movement Hanoar Haoved Vehalomed, who served together in the Israel Defence Forces and shared a belief in the founding principles of Zionism. “Through truly innovative education based on dialogue and understanding, we teach leadership and responsibility for self and community. We promote social activism to drive positive change,” the organization states on its website.

Both Schlanger and Zeiger-Guerra live on urban kibbutzim established by Dror, a recent adaptation of the rural kibbutz. Between 30 to 100 young adults, aged 20 to 40, live on each of Dror’s 16 kibbutzim in Israel and work on the organization’s educational, cultural and social projects. With an emphasis on social justice, members of Dror Israel reside in the neighbuorhoods they serve, seeking to bridge gaps and solve local problems.

Throughout the pandemic, Dror Israel has been engaged in opening daycare centres for the children of doctors, nurses and healthcare workers; delivering groceries and medicines to home-bound seniors and those in need; volunteering on farms; and providing online programming for thousands of teens.

“Our message and the story of our work really resonated with everyone we met and sparked a variety of thoughts about future cooperation between Dror Israel and local organizations,” said Schlanger of his time here. “Our hearts were warmed by people’s decision to support our programs. It really attests to the strong, living connection between the Jewish communities here and Israel.”

After more than two years of being unable to visit or host trips to Israel due to COVID, Schlanger said Dror Israel hopes to reinvigorate connections that began many years ago in the region. Aside from delegations of educators to British Columbia, it looks forward to hosting visits in Israel.

“Joanna and Noam were very well-received,” said Sid Tafler, one of organizers of the emissaries’ stay in Victoria. “Many people were inspired by their message of peace and coexistence in Israel, principles they don’t just espouse but practise and live every day.

“We learned about their compassionate and community-building work with youth-at-risk, isolated older people, members of minority communities – including Druze and Arabs – and integrating new olim recently arrived from war-ravaged Ukraine. We have received guests from Dror before and expect we will welcome them again.”

For more information, visit drorisrael.org.

Sam Margolis has written for the Globe and Mail, the National Post, UPI and MSNBC.

Tikva builds in accessibility

Dogwood Gardens, which is due to open later this year, features an open garden space with shading that is set off from the street. (photo by Lior Noyman Productions)

In October last year, Tikva Housing Society, in conjunction with YMCA Metro Vancouver and the Association of Neighbourhood Houses, opened Kerrisdale’s newest affordable housing project at Arbutus Centre. Named x^wƛ̓əpicən (pronounced “hook la’pitzen,” Musqueam for “the Hollow”), the 125-unit project is designed to meet a vital need in one of Vancouver’s most exclusive and high-priced residential areas: affordable housing that is also universally accessible to anyone with a disability.

“[The new project] includes nine adaptable units that are designed for people with mobility challenges who do not need a wheelchair or walker,” explained Anat Gogo, who serves as Tikva’s manager of programs and donor relations. The nonprofit finds creative ways to increase affordable housing, primarily for Jewish low- to moderate-income families and individuals.

Adaptable units mean that individuals who have accessibility needs are able to have the unit modified to meet their individual requirements, whether it’s grab bars in the hallway, structural adaptations that make it easier to cook or special lighting for low-vision needs. Many apartment buildings don’t allow tenants to make structural modifications, even to accommodate disabilities. By offering a limited number of adaptable units, fully accessible apartments can be reserved for individuals who require a wheelchair-adapted unit. Tikva manages five such rentals at the Arbutus property.

photo - The Arbutus Centre project has units in which the kitchen counters and appliances are lowered to accommodate wheelchairs and walkers — The Arbutus Centre project has units in which the kitchen counters and appliances are lowered to accommodate wheelchairs and walkers. *(photo from Tikva Housing)*

Projects like the one at Arbutus Centre are reflective of Tikva’s vision of affordable housing. “We are committed to fostering inclusive housing that serves all populations within the community,” said Gogo. It’s a mission that continues to adapt to the increasing demand for affordable housing in Greater Vancouver’s Jewish communities.

One of the drivers for finding new ways to increase accessible housing is Vancouver’s aging population, noted Gogo. “It’s important to recognize that our aging baby boomers will benefit from enhanced accessibility for those with mobility challenges.”

But it also benefits families and individuals of all ages who face barriers in their day-to-day living, she added. According to Statistics Canada (2017), more than six million Canadians live with one or more types of disability. Invisible disabilities are among the most frequent conditions noted, with housing options constricted by accessibility barriers, discrimination and employment limitations.

photo - An accessible bathroom features a roll-in shower and open design to accommodate walkers, wheelchairs and other mobility considerations — An accessible bathroom features a roll-in shower and open design to accommodate walkers, wheelchairs and other mobility considerations. *(photo from Tikva Housing)*

As a result, the B.C. Building Code now requires new and renovated buildings to be accessible to anyone with a disability, which includes “a person who has a loss, or a reduction, of functional ability and activity and includes a person in a wheelchair [or] a person with a sensory disability.” Adaptable housing that can be modified economically and at a later date is British Columbia’s newest technology to meeting that growing and variable demand.

According to Gogo, Tikva is exploring ways to ensure that accessible housing addresses all needs, including those associated with invisible disabilities, such as autism spectrum disorder, vision disorders, and autoimmune conditions like multiple sclerosis and rheumatoid arthritis. She said Tikva actively seeks partnerships with other organizations that can support that expanding effort. “We have a great partner in the Jewish Family Services that is open to this initiative,” she noted.

The society also regularly networks with builders to explore new ways of meeting that goal. She said improved designs include features like “well-ventilated spaces, soundproof walls, signage that makes all tenants and visitors to the building know that this is an inclusive building.” Tikva also holds workshops and training for staff to help them engage with residents and stakeholders in the community.

The demand for accessible housing has also created new funding incentives that in turn will increase the amount of inclusive housing on the market. “Canada Mortgage and Housing Corporation is responsible for delivering [Canada’s] National Housing Strategy,” Gogo explained. The program offers reduced financing rates for nonprofits and developers whose housing developments comprise at least 20% of fully accessible units or universal design throughout the project.

“We take advantage of opportunities to advocate to all levels of government for special features to be included in design requirements that would improve quality of life for residents, including push-button door openers for accessible suites and amenity rooms, grab bars in all bathrooms, and wheelchair access to all outdoor amenity spaces,” said Gogo.

And Tikva is exploring ways to address other types of invisible disabilities, such as those triggered by environmental conditions. Gogo said the housing society is in the process of retrofitting one of its older buildings and is actively participating in the design stages. “We’re still in the very early stages of this planning,” she said, “but all considerations are on the table to create a living environment that would benefit our tenants no matter what their medical condition may be.… More research and public education would help build the case for those with invisible disabilities. Inclusive communities are those that recognize the diversity of our population, and that everyone deserves to have access to services, recreation and civic engagement.”

At the present time, three of the six properties Tikva operates have accessible housing. Dogwood Gardens, on 59th Avenue in the Marpole community, is due to open later this year, managed in joint cooperation with SUCCESS. For more information about available rentals, go to tikvahousing.org.

Jan Lee is an award-winning editorial writer whose articles and op-eds have been published in B’nai B’rith Magazine, Voices of Conservative and Masorti Judaism and Baltimore Jewish Times, as well as a number of business, environmental and travel publications. Her blog can be found at multiculturaljew.polestarpassages.com.

Talking neurodiversity

A Feb. 28 webinar explored the topic of neurodiversity, a term that encompasses a wide range of conditions, including autism, ADHD, dyslexia and Tourette Syndrome.

The talk, organized by PJ Library, Jewish National Fund of Canada Pacific Region, the Jewish Federation of Greater Vancouver, the Jewish Community Centre of Greater Vancouver and JCC inclusion services, was part of this year’s recognition of Jewish Disability Awareness and Inclusion Month (JDAIM).

“So often there is a grand stigma that a child has to fit the mold of what society wants of them. Our differences are what make us so valuable and so integral to creating positive change. I am thankful for my differences,” said Margaux Wosk, an autistic artist and entrepreneur, who provided introductory remarks.

The panelists for the evening were Dr. Janet Mah, a registered psychologist; Suzanne Ferera, a family counselor and registered occupational therapist; and Michele Shilvock, a certified behaviour analyst. Lisa Romalis, a teacher who is also a parent of a neurodiverse child, was the moderator.

Mah began by discussing common misconceptions regarding ADHD, or attentive deficit hyperactivity disorder. ADHD, she noted, is the broad term applied to capture three manifestations of the disorder: inattention, impulsivity and hyperactivity. She explained that ADD (attention deficit disorder) is an outdated term that would fall into the ADHD umbrella.

Children with ADHD might not be easy for educators to spot. “Often they are the quiet daydreamers that don’t disrupt the classroom, or the highly intelligent kids who are underachieving in relation to their own potential,” said Mah, an associate at the Cornerstone Child and Family Psychology Clinic, a clinical assistant professor in the faculty of medicine at the University of British Columbia and an expert in behavioural parent training and cognitive behavioural therapy.

Another misconception stems from the word “deficit” in ADHD. Frequently, a child’s attention will show signs of inconsistency, rather than a deficit, she explained. That is, a child with ADHD may be able to focus on subjects that are of interest to them. The difference lies within the executive functions in the brain, i.e., the ability to make transitions to a less-preferred task, time management, peer relationships, flexible thinking and emotional regulation.

There is, as well, a misconception centring around the use of medication, Mah pointed out. Many fear that those who take medication for ADHD will suffer a “zombie effect” or be susceptible to an increased risk of substance use. Proper treatment, she said, helps increase a positive trajectory for a person. Grades and behaviours may improve, bringing about more self-confidence and better friendships.

Mah emphasized the importance of external supports or adjusting the environment for those with ADHD. “ADHD is not a knowledge deficit,” she said. “It is more of a performance deficit. Most kids with ADHD know what the right thing to do is; they just have difficulty doing it in the moment.”

Ferera shared with the audience some of the parenting strategies she employs. A practitioner of the “calmer, easier, happier” method, founded by British learning and behaviour specialist Noël Janis-Norton, Ferera works as a school counselor and goes into family homes to help children who have behavioural difficulties.

One of the strategies Ferera uses with parents and teachers is descriptive praise. Rather than correcting behaviour or using vague or over-the-top praise to bring about improvement, descriptive praise recognizes the positive behaviours of a child, such as honesty, hard work and kindness.

“When we say ‘good job’ to a child, we are not giving them any useful information about what they did right so that they can do it again. Also, words like ‘awesome’ are not particularly believable to a child who knows they haven’t done anything awesome,” she said.

Descriptive praise is more specific. For example, if a child is being cooperative, a parent might say to them, “I asked you to put your toys away and, look, you’re putting your toys away.”

“The reason it is so important is that we all, as human beings, want to be appreciated, so, if we can use descriptive praise, it helps children understand that they can do the right thing and that they can do it again,” said Ferera, who believes this strategy can bring about a positive attachment in the parent-child relationship.

Shilvock, who has worked in the field of autism and neurodiversity for more than 23 years, supporting children and families through direct intervention design, supervision and parent coaching, described her approach as a behaviour analyst as follows: “Good therapy should be reflective about how learners learn. I am not about turning children into anything other than into the amazing individuals they already are.”

She, too, underscored the importance of environment and celebrating the diversity in neurodiverse children. Further, she stressed understanding a child’s social skills by gathering information and knowing where the “landmines” or potential triggers are. For example, if a child is attending a birthday party, a parent should find out what the plan for the party is ahead of time. This way, they can ascertain if there are any potential issues and decide if it is best for their child to go there without them or if they should accompany the child.

In concluding remarks, Michael Sachs, executive director of JNF Pacific Region, thanked the participants and recognized the wide range of topics covered in the webinar, as well as the need for more conversations on the topic in the future.

Sam Margolis has written for the Globe and Mail, the National Post, UPI and MSNBC.

We all have our limitations

This month, Jewish communities across North America take time to recognize and celebrate one of the world’s largest and often overlooked minorities: persons with disabilities. Jewish Disability Awareness and Inclusion Month (JDAIM) was launched by a Jewish educational consortium in February 2009. It’s no surprise that its call to action resonates loudly with Canadians – Canada is believed to be the only country in the world that has disability rights enshrined in its constitution.

As someone with disabilities, I can see why a cold and often blustery month was chosen to mark the need for better inclusion. February weather often comes with its own navigational challenges. For the more than 6.2 million Canadians who live with disabilities, icy streets, cold, rain, snow and dismal skies can be even greater impediments to independence.

As I discovered one winter, however, an inclusive community can also play a significant role in easing those challenges. In 2015, my husband and I were in Idaho caring for his mother when I received word that my mom was in the hospital. I needed to come back to Vancouver.

Returning home wasn’t an issue for me. I had traveled to Vancouver many times to visit and care for family members. Attending Shabbat services at my local synagogue had become a ritual each trip that helped provide balance and focus. The Isaac Waldman Jewish Public Library, which afforded me a place to write, had been my other essential refuge.

But this time there was a problem: I couldn’t make the trip alone. As is true with many people diagnosed with an autoimmune disease, my symptoms were multi-factorial and differed according to the time of year. In this case, my biggest adversary was the ups and downs of winter weather and their impact on my circulatory system. This year, the flares were worse. I knew Happy, my trained service dog, would be needed in order to make the trip. Weighing 50 kilograms and hip-high, my King shepherd was strong enough not only to provide support when I walked, but help me up when I fell.

Judaism has never been terribly comfortable with the idea of an animal stepping inside a synagogue, even a professionally trained service dog. In my grandparents’ time, such considerations would have been unheard of. The prospect of a guide dog inspired lengthy debates by 20th-century rabbis who held wildly differing views about the appropriate accommodation for community members with disabilities. As I picked up the phone to call the synagogue, I readied myself for the possibility that I wouldn’t be attending Shabbat services that trip.

There was an understandable pause on the other end of the line when I asked if I could bring my mobility service dog to services. I was told to hold on; she would ask the rabbi. The answer came almost instantaneously: the congregation would be pleased to welcome us to shul.

If there is anything that these last two years of COVID precautions have underscored, it’s the irreplaceable value of community. Sitting in synagogue and having access to the community resources I cherished during my times in Vancouver helped provide a sense of normalcy while I dealt with my mother’s illness. Happy’s stoic, quiet strength not only gave physical support when I needed it, but a heightened sense to unfamiliar territory. Research has found that service dogs can detect changes in heart rate with a range of medical challenges, including heart conditions and diabetes. More than once, Happy guided me back to a point of safety when he sensed my legs weren’t able to navigate the cold.

To educate the library’s many young visitors about its unusual working visitor, the head librarian at the time, Helen Pinsky, informed patrons of Happy’s visit. The Jewish Community Centre of Greater Vancouver did its part to make us feel welcome as well. Most surprising were the parents’ reactions. Many saw our presence as an opportunity to teach children about respecting the role of a service dog and the person at his side. One mother confided that her little boy, who struggled with his own physical disability, was uplifted when he met Happy.

This issue’s article on disability explores the many ways that Vancouver Jewish institutions are working to increase disability awareness and inclusion. (Click here to read.) The examples are paired against research that suggests that while U.S., Canadian and Israeli Jewish communities continue to make remarkable strides in this area, there’s more that can be done. Building a disability-inclusive community is most successful, the research found, when leadership reflects the society it leads. We spoke with one rabbi who is using his own medical challenges to uplift and inspire those with differing abilities in his community.

I have come to realize over the years that a truly inclusive community is one that sees no limitations in how it defines capacity. We all have our limitations, and our unique gifts. We all have our dis-abilities. By bolstering diversity and inclusion in the society in which we live, we not only lift up those beside us, we lift those who will follow after us.

Artwork of belonging

Mike Levin’s “Waiting for the Train.”

Community Longing and Belonging is a community art show in celebration of Jewish Disability Awareness and Inclusion Month. It opened at the Zack Gallery on Feb. 14.

Curated by Leamore Cohen, inclusion services coordinator at the Jewish Community Centre of Greater Vancouver, the fourth annual exhibit once again considers the questions, How do we make meaning of the concept of community, the real and the imagined spaces we inhabit? What does community longing look like and what are the possibilities for belonging in an ever-changing world?

Many of the pieces on display were made by artists from JCC Art Hive, a free and low-barrier program for artists with diverse needs. The collection comprises the work of diverse artists, with different levels of experience, perspective, faith and social location.

One of those featured is award-winning artist and writer Sandra Yuen, who is a member of Kickstart Disability Arts and Culture. Her piece, “Exploded,” is based on the prose of Derrick Bauman, an artist and writer, and influenced by pop art, Roy Lichtenstein, and graphic design. In her artist’s statement, Yuen writes, “As a person with schizophrenia, I wanted to express the fractured mind, the cut edges, the shattering of my life experience because of mental illness. However, this rendition is more a poetic image versus the cruel reality of living in madness, paranoia, hysteria and anger. The colours are sweet, the black lines clean and sharp, creating a mythological or romanticized view of insanity. I try to whitewash my life, sanitize the pain out of it, deny the diagnosis, but the illness remains, the weakness, the flaws, the humanity.”

photo - “Exploded” by Sandra Yuen — “Exploded” by Sandra Yuen

Mike Levin’s “Waiting for the Train” is about being shrouded in darkness, yet feeling the abundance of sunshine not far away. It is a metaphor for the continued longing for COVID to end so that we can get back to normal living.

Levin’s paintings are often abstractions of nature or city life that conform to structure of composition. They are amalgamations conjured from his imagination, photos he has taken and memories of his experience of exploring.

Growing up in Calgary, Levin has practised art from a young age, and also plays clarinet and saxophone. He attended the University of Calgary’s fine arts and urban studies programs and, after moving to Vancouver, completed his bachelor’s degree in fine arts at Emily Carr University of Art + Design in 2020.

For the past 20 years, Levin has lived with schizo-affective disorder, which he controls through medication and being active in the arts and mental health communities. He has taught drawing and painting at Vancouver General Hospital, the Art Studios, Gallery Gachet and privately within the community; he also works part-time in carpentry. His art has been sold in Canada and the United States to more than 70 private collectors.

Mark Li is a Vancouver-based visual artist whose narrative-focused work creates a whimsical world filled with colour and imagination, as his untitled work in this exhibit shows. Every painting is a tale of friendship and acts of kindness: a bear might be best friends with a cat; a T-Rex smiles with shy humour and sweetness at the viewer; a lady bug and a cat might go dancing in the sunlight; a simple walk in the park with a friend and his dog is a delightful adventure – anything could happen and they could meet anyone.

photo - “Untitled” by Mark Li — “Untitled” by Mark Li

Rickie Sugars’ “Like Minded” is an example of his unique style of painting in abstract cubism expressionism, using bold colours and black outlines.

A seasoned professional artist, Sugars had his first gallery showing, and sold his first painting, at the age of 17. Since then, he has displayed and sold his art in several galleries and art shows throughout British Columbia.

Sugars is a classical animation graduate from Vancouver Film School. He started creating animated characters well before graduation, resulting in a partnership in an animation company that went on for many years. Continuing his artistic path, he began tattooing in 2004 and has his own tattoo shop. He also designs sculptures created from broken toys.

A few years ago, during an attempt to assist a woman who was being attacked, Sugars received a traumatic brain injury. He had to re-learn everything, including how to talk – however, it did not stop his artistic endeavours. Today, you will find Sugars painting on canvass (or any surface, really), crafting stickers, postcards, wall murals, sand and wood sculptures, and interior/exterior commissioned graffiti.

“My artwork is influenced by media, fads, plus social, political and cultural issues,” he writes in his artist statement. He wants viewers “to look past the obvious, to treasure and celebrate the unique, the unconventional, the familiar: and to be nonjudgmental. Respect others and support them for who they are. Find the beauty in broken toys, an old door, a broken guitar – take time to look more carefully at things around you and you’ll discover beauty in unusual places.”

Another of the artists contributing to the Community Longing and Belonging exhibit is Adrianne Fitch.

Born in Kew Gardens, Queens, N.Y., Fitch studied English and writing at Pennsylvania State University and has traveled all over the world, including living and studying in Israel. She has lived in Vancouver since 2008 and pursues a number of other art forms. She is also a writer and desktop publisher.

“Having lived with a hearing disability and also struggled with depression all my life,” she writes, “I definitely know what it means to feel isolated. As hearing loss is invisible, people frequently make assumptions about me (e.g. they think I’m stupid, stoned or purposely ignoring them). As I did not begin learning ASL until adulthood, I occupy that grey area between the hearing and deaf worlds. I miss a great deal of communication, both spoken and signed, and have often felt as though I don’t belong anywhere.

“That’s why this art show’s theme, Community Longing and Belonging, is so significant and meaningful to me. Indeed, I have always longed for community and belonging. The Jewish community, with its wonderful heritage and incredible diversity, is very precious to me. In creating these three ceramic menorahs, I have tried to express this diversity, as well as my love for the Jewish people.”

Community Longing and Belonging is at the Zack Gallery until March 17. There is a virtual meet-and-greet with the artists on March 2. Visit jccgv.com/art-and-culture/gallery or email Cohen, [email protected], for more information.

– Courtesy Jewish Community Centre of Greater Vancouver

Accessibility seems improved

(image from flickr / Province of British Columbia)

Last November, the American advocacy organization Respect Ability announced some good news. New research it had conducted in 2021 suggested that disability awareness and inclusion was improving in Jewish communities across North America and Israel. According to its most recent survey, more synagogues, Jewish community centres, schools and private institutions are designing programs that consider the needs of people with disabilities. And more individuals are able to find Jewish organizations that support individuals with invisible disabilities like autism and attention-deficit/hyperactivity disorders.

Respect Ability’s goal for the survey was to determine the health of disability rights in diverse Jewish communities, particularly in countries where there were laws against employment and housing discrimination. Its last survey had been in 2018, and researchers wanted to know whether accessibility and acceptance had improved in the past three years.

There were just over 2,000 respondents in total, primarily from Canada, the United States and Israel. The overall message was that inclusion and accommodation was expanding. Accessibility for wheelchairs and improved opportunities for individuals with sight or hearing challenges were on the rise, as were outreach efforts for individuals with disabilities in general.

What is more, the number of faith organizations hiring rabbis and staff who had disabilities and, therefore, understood firsthand the challenges of a physical or cognitive disability, had increased by more than 73%. More than half (57%) of the survey-takers also said that the organizations had made public commitments to support diversity.

But the survey also identified a key obstacle: many community leaders wanted to help expand opportunities for inclusion, but “didn’t know how.” Roughly one-fifth of all respondents said that expanding opportunities in their faith communities was limited by leaders’ lack of knowledge or experience in making settings more accessible. This meant, in some cases, that members with invisible disabilities like autism or ADHD didn’t have access to resources or were turned away from programs and activities.

Most of the responses to the survey came from Respect Ability’s home base: U.S. states like California and New York, where laws and advocacy initiatives are different from those in Canada. Only about 7% of the responses came from Canada, where disability rights are protected by the federal Charter of Rights and Freedoms. The survey also did not reveal how much, or if any, of the Canadian data came from the Vancouver area. So, are the survey’s findings reflective of diversity inclusion here?

The last three years have been challenging for many, but particularly for organizations that rely on in-person community participation. The 2020 shutdown of schools, synagogues and community centres due to COVID forced many organizations in the Vancouver area to suspend programs that offered disability-inclusive services. Still, the Jewish Independent found that a number of organizations were able to develop creative ways to maintain their inclusive classes and programs.

Trying to inspire inclusion

In 2018, the Jewish Federation of Greater Vancouver launched its Inspiring Inclusion grant program to assist community organizations in designing or improving inclusive programs. The grant competition was created as part of its 2020 Strategic Priorities, and it offered up to $2,500 to organizations that developed a new program or idea that would expand disability inclusion.

Four one-year grants, which were awarded in 2020, went to Vancouver and Richmond applicants. Each offered a unique way for engagement, ranging from new educational strategies that catered to individual learning approaches to special equipment that helped expand creative participation in the classroom.

The Jewish Community Centre of Greater Vancouver’s Family Yoga Fundamentals program was designed to appeal to a variety of abilities and offered options for in-person family participation. It later gave rise to a virtual format that attendees could link up with from home. According to the JCC’s adult programs coordinator, Lisa Cohen Quay, Family Yoga Fundamentals integrates adaptable exercises that are non-stigmatizing and fit a variety of abilities. Quay said the program has also been shown to help with pandemic stress and loneliness.

Richmond Jewish Day School turned to music as a way to inspire inclusion. According to principal Sabrina Bhojani, the grant provided funding for specially adapted Orff percussion instruments, or xylophones that could be used by students with special needs. “Music education is an integral component of both our B.C. and Hebrew curriculum at RJDS,” Bhojani said. “Weaving music into [the] curriculum is a meaningful way to help our students develop their Jewish identity and better understand their culture.”

Congregation Beth Tikvah used the funding to help develop Kavod. According to Rabbi Susan Tendler, the program aims to ensure that the synagogue’s services and activities are open to everyone, “regardless of personal physical, financial, or accessibility limitations.” Kavod’s development is ongoing.

Congregation Beth Israel received a grant to create new Hebrew school programming. Beth Israel’s director of youth engagement, Rabbi David Bluman, said the funding helped make the Hebrew reading program more inclusive to children with learning challenges. “We always strive to be [as inclusive] as we can,” he said, adding that many of Beth Israel’s youth programs are adaptable to students’ abilities, such as the use of “shadow” companions who function as a “big brother or big sister” for a child during activities and lessons. The shadow program can be used for age levels. “We want our teens to be as independent as possible,” Bluman said.

B’nai mitzvah programs

Both Beth Israel and Temple Sholom tailor their b’nai mitzvah programs to meet the specific abilities of the child. Temple Sholom School’s principal, Jen Jaffe, said about 10% of the student body have varying needs.

“All b’nai mitzvah-aged children are given the opportunity to have a b’nai mitzvah, and the clergy works with each family to make sure expectations and goals are feasible and met. Each child is given the chance to shine regardless of any disabilities,” Jaffe said. The school also trains madrachim, or helper students, to support students with invisible disabilities.

Beth Israel is also known for its inclusive b’nai mitzvah program, which is led by ba’allat tefilla Debby Fenson. She said the program is designed to ensure that a child, irrespective of ability, can participate in the service: “I think that the expectation is that every child should be called up to [the bimah]. It’s not about how well they read the Torah, it’s about welcoming them into the community.”

Fenson said the community has celebrated more than one b’nai mitzvah in which a child’s medical challenges needed to be considered. In one case, the child, who was nonverbal, was aided by his mother in saying the Shema. “There was clear understanding on his part,” Fenson said. “His mother helped him in forming the words and saying along with him. He was welcomed into the community.”

Leadership by inclusion

Respect Ability’s survey of North American and Israeli Jewish communities highlighted two factors that are often important to creating inclusiveness: the top-down commitment to diversity and a leader’s personal experience. All of the above synagogues, schools and community services – as well as others – benefit from clear initiatives that attract families with accessibility needs and see inclusion as an expanding mission. In some cases, they also benefit from leadership that is open about their own health challenges as well.

Beth Israel Rabbi Jonathan Infeld said he is aware that his willingness to talk openly about his own challenges can help create a supportive environment for others. Infeld was born with a congenital heart defect.

“Unfortunately, I have firsthand experience with health issues that I am happy to share with people about, certainly because I want to be transparent about who I am as a human being…. I would hope, had I been born with a whole heart and not a hole in it, that I would still have a whole heart,” he said, noting that when we’re forced to reflect on our own abilities and limitations, it can inspire empathy for others faced with similar challenges.

One area that was not addressed in the survey was accessible housing, which helps expand disability inclusion. Tikva Housing Society’s very first housing project in 2008 contained accessible units. The organization’s third inclusive property, Dogwood Gardens, opens this year in the West End. This will be the subject of a future story in the Jewish Independent.

Turning tragedy to hope

The year 2016 was a milestone for Kalman and Malki Samuels. It marked the inauguration of a dream years in the making – the opening of the Shalva National Centre, one of the largest centres of disability care and inclusion in the world. Built not far from the entrance to Jerusalem, the 12-storey world-class complex features an auditorium, a gymnasium, hydrotherapy and semi-Olympic pools, a virtual reality therapy suite, a research and study institute, a café, some of whose workers have developmental disabilities, and accommodations for 100 respite sleepovers per night.

How was it that Kalman and Malki Samuels came to create this extraordinary organization that assists 2,000 children with disabilities each week, while empowering families and promoting social inclusion? The answer lies in the subtitle of Vancouver native Kalman Samuels’ Dreams Never Dreamed: A Mother’s Promise That Transformed Her Son’s Breakthrough into a Beacon of Hope (Toby Press, 2020) – it was a mother’s promise.

In 1977, the couple’s healthy, lively baby boy, two weeks short of his first birthday, was checked by a doctor at a Jerusalem clinic before receiving his second DTP inoculation; and all his developmental milestones were fine, so the nurse gave him the shot.

But Malki knew the same day that something was wrong. “I took Yossi home and followed the instructions they’d given me at the clinic…. I bathed him, gave him baby paracetamol and let him sleep. The moment he woke, I knew my baby was gone. He looked up at me with shiny eyes as if to say: ‘What have you done to me?’”

Only later did the couple discover that, on that October afternoon, “Israel’s health authorities had already known for almost five months that the vaccine batch they were using … was dangerously flawed.” The defective pertussis (whooping cough) component was from the Connaught Laboratories of Canada. The diphtheria and tetanus components were from the Israeli company Rafa, which had combined the three.

Thus began a saga of almost 40 years of anguish, faith, research, perseverance, legal battles and, ultimately, the realization of dreams, not only for the injured Yossi, but for thousands of other children with disabilities.

Dreams Never Dreamed is written chronologically, beginning with Kalman’s personal story of visiting Israel as a college student in the 1960s, eventually becoming Orthodox, making aliyah and marrying his life partner. He writes his family’s spellbinding story with an honesty and openness that opens and pierces our hearts as well.

Yossi was ultimately diagnosed as legally blind – though he loved to wear glasses because it helped him feel more competent – and legally deaf. He is also severely hyperactive.

The Samuels left their home in Israel for New York, following every medical lead in search of help for their son. While her son was attending the Lighthouse – a famous specialized school for the visually impaired – Malki made a pact with God: “… I promise You this. If You ever decide to help my Yossi, I will dedicate my life helping so many other mothers of children with disabilities whom I know are crying with me for their children.”

Some challenges were especially painful, like when children teased Yossi, or when an important Jerusalem rebbetzin, visiting New York, said to Malki, “It’s not fair to yourselves or your healthy children…. You should consider moving this child out of the house, so you can get on with your lives.” Malki answered her: “You have no faith in God.” She invited the rebbetzin to wait 20 minutes, till Yossi came home from school. She saw a child nicely dressed, with glasses and hearing aids, carefully navigating the steps and hugging and kissing his mother, happy to see her. The rebbetzin cried and asked forgiveness.

A few years later, the couple learned that a lawsuit could only be filed in Israel, since that was where the vaccination had been administered. They found an excellent Israeli lawyer and doctors willing to testify, and the family returned home. Samuels describes the legal battles in excruciating detail. In October 1983, five years after the vaccination and after exhaustive paperwork and research, the couple filed suit against the Canadian Connaught Laboratories, the Israeli Rafa pharmaceutical company, the city of Jerusalem and the State of Israel. (The lawsuit ended in a settlement that, even according to the judge, was less than they deserved, but would save them more years of expensive and aggravating legal action.)

At the age of 8, Yossi experienced a “Helen Keller” moment, when Shoshana Weinstock, a warm and loving teacher who was deaf herself taught him his first word – shulchan (table) – using finger spelling. “All of a sudden, he lit up and he got it,” Kalman is quoted as telling the Jerusalem Post. “She taught him the 22 letters of the Hebrew alphabet. Another speech therapist taught him how to speak Hebrew and, slowly, he began to talk.” After that, Yossi was unstoppable. He learned to type on a Braille typewriter, to pray and to speak to those who were able to understand him.

Spurred on by their son’s breakthrough, in 1988, the couple wrote the first proposal for an outreach program that would help other families with children with disabilities. In 1990, that proposal became Shalva, the Israel Association for the Care and Inclusion of Persons with Disabilities, which began as an afterschool program for six children in the Samuels’ Har Nof apartment. The name Shalva is derived from Psalm 127 and means serenity, but, like any new enterprise, the road to success was challenging. The book is filled with anecdotes about how chance meetings on airplanes, or through conversations with a friend or a neighbour, Kalman reached donors who kept Shalva going and led to its development and expansion.

In addition to giving her life and creativity to making sure the professional programs would be the best they can be, Malki, the powerhouse engine behind Shalva, was involved in every aspect of the design and building of the Shalva National Centre, right down to the tiles. She was determined that it feel like a home, not an institution. Renowned Israeli artist David Gerstein, deeply moved by the Shalva story and appreciating Malki’s vision, created a magnificent 20-foot-high mobile of metallic butterflies that hangs in the Shalva atrium.

Around 2005, a gifted young musician, Shai Ben-Shushan, offered his services to Shalva. He had been a member of the Duvdevan special forces unit in the Israel Defence Forces and suffered severe injuries from a grenade attack while pursuing terrorists. He told Kalman, “Like a baby, I had to learn again to eat and to talk. My life was destroyed … I learned what it was like to be helpless and dependent on others … and I began to think about going back to music and sharing it with others who have similar challenges.”

By the end of a year, Shai had created the now world-renowned Shalva Band, signaling to all that having disabilities does not mean one cannot reach for the stars and make dreams come true.

In 2020, Shalva graduated its first program of young men who entered the IDF as soldiers in the Home Front Command unit. Israel’s Ministry of Foreign Affairs brings heads of state and diplomats to Shalva, just as they take them to Yad Vashem: World Holocaust Centre and to Mount Herzl, the burial place of soldiers who died defending the state of Israel.

Dreams Never Dreamed is alternately inspiriting, infuriating, funny and enlightening, but, for me, Malki’s voice and her photograph are missing. If you want to “meet” her, you can watch a mesmerizing Shalva-produced film on YouTube, About Yossi – A Film About Yossi Samuels.

The Yossi of today is smart, learned, eloquent and brave, with a sharp sense of humour. He can type, read, and daven in Braille, and particularly enjoys high-level Torah literature and magazines. He has traveled the world, met with celebrities and presidents (in Israel and America), is a horseback rider and a certified wine connoisseur. Kalman writes, “[Yossi’s] close friends number in the hundreds and acquaintances in the thousands.”

As his walking ability and balance worsened, Yossi eventually required a wheelchair. “Our blind and deaf son said, ‘For the first time in my life, I feel handicapped,’” writes Kalman. “Yossi had never referred to himself as blind or deaf, but rather ‘low vision’ and ‘hard of hearing.’”

Kalman recalls in the book how his daughter, Nechama, told him that he was like Forrest Gump: “Mommy had her dream and told you, ‘Run, Kalman, run!’ You’ve never stopped; it has coloured your life and all of ours.”

And the lives of thousands more.

Toby Klein Greenwald is an award-winning journalist, the artistic director of Raise Your Spirits Theatre, a poet, a teacher and the editor of wholefamily.com. This review first appeared in the Fall 2021 issue of Jewish Action.